It's been a whirlwind these past two weeks. It's been hard to wrap my mind around the fact that my son has brain cancer. It's IMPOSSIBLE to not think about it. I try not to think about the future and its uncertainties, but it's so hard because so many things trigger certain thoughts. For example:
*Music - whether it's a church hymn or a song on the radio, some phrase or word will trigger an emotional reaction with me. Several songs that I've heard lately have talked about loss or death and will cause me to think of what will happen in the future.
*Driving - I will see a sign for funeral homes at a stop light or drive by a cemetery and immediately my thoughts turn to his funeral. When will it be? Who will come? How much time do we have left to spend together? Also... I heard on the radio just last night about different symptoms of various cancers and just broke into tears.
*Other media - I was reading in our church's magazine a talk that my bishop recommended and while flipping through it, stumbled across a talk about a man living with cancer. I've been reading up on things dealing with cancer and different fundraising activities and groups like the University of Iowa's Dance Marathon and I read about some of the children and started bawling as I read about some of the kids in the past tense. They had lost their battle and immediately I thought of Oliver.
*Church - While it gives me comfort to have a knowledge of the gospel, it is very difficult going to church because everything talks about returning to live with Heavenly Father again. I know it's why we are here on earth, but it saddens me to think that Ollie may be gone too soon. Too soon for ME.
*Sayings - "My batteries are DEAD", "I was DYING laughing", "I just DIED" (Playing a video game), "I could have KILLED him", etc. It's amazing to me how many different phrases have the words "dead" or "dying" in them.
It's been really rough because I never know when, where or how strongly my emotions will get to me. I've had a breakdown in a restaurant, in a grocery store, in church. It's very overwhelming to try and process what is going on right now. At those moments I wish I could just open up a trap door or hide under a rock. I just feel eyes upon me and some may know what is going on, but most people don't know. It's hard to try and explain how I feel right now. It changes so much from one minute to the next. One minute I will feel strong and know that it is because of the spirit that I am able to stand and the next minute I am a blubbering mess. I start out each morning praying for strength to get through the day and try to keep it together as much as possible. I pray for peace and hope for the future, but I know that his prognosis is grim. I am trying to prepare myself for the inevitable, but HOW do I??? My step mother said that I can't think of the future, I have to live day to day.
It's been rough because I know that this is bringing back hard memories for my stepmom. Eight years ago my step brother, Alex passed away from a brain tumor. Oliver was only 6 months old. Christmastime is a hard time of year because we found out about Oliver's brain tumor on the 23rd of December and my stepmom found out about Alex's brain tumor near Christmas as well. He lived for a year and passed away on New Year's day and I believe he was only 23. I remember some of the things that he had to deal with as his disease progressed and I am worried that Ollie will have to go through some of the same things. It's hard watching your children go through pain and suffering especially when there is nothing that you can do to ease it. I can pray for him and try to make the best decisions with regard to his medical care, but I personally cannot take this away from him. My heart aches for my stepmom at this time. The day we found out about Oliver I wanted to call her because I knew that she was one of the ONLY people that could say that she knew what I was feeling and that she would know what road I was about to start down. Her and my dad came by the house and talked and cried with me and Ed. I know it was difficult for her to hear and I've been thinking about her so much lately. It meant a lot to my mom for her to come over and support us as well.
It's been overwhelming these past two weeks to see the outpouring of support and love for our entire family. Friends and family who have been supportive always, people who have forgotten grudges, friends of friends, aquaintances, co-workers and perfect strangers have offered up prayers on our behalf. I KNOW that without their prayers, I would not be able to function. Although I've had my breakdowns, I've been able to think clearly most of the time and cling to my spiritual knowledge... my testimony of the plan of my Heavenly Father. I truly feel that this has strengthened my relationship with Him. I've come to Him in constant prayer and have truly 'prayed without ceasing'. I know that I've struggled with forgiveness on some levels and I know that my heart is being softened... that I am being refined at this time. I have been brought to tears when thinking of the future, but I've also been greatly blessed by the spirit to remember where Ollie will be going that he will be taken care of by members of our own family that have gone before us. It brings to light the importance of doing our family history, to get to know who our ancestors are. We've talked to Oliver about who may be there on the other side to meet us whenever we may pass away. We need to know about these people to be able to tell our children who may be there to greet us at that day. It's scary to think about death when you don't know exactly what to expect.
Again... I've been singing some hymns and really listening and pondering the words. I always sing "I Am a Child of God" to my children, but lately the words have had a greater impact on me.
I am a child of God
And He has sent me here.
Has given me an earthly home
With parents kind and dear.
Lead me, guide me, walk beside me
Help me find the way.
Teach me all that I must do
To live with Him someday.
I am a child of God
And so my needs are great.
Help me to understand his words
Before it grows too late.
Lead me, guide me, walk beside me
Help me find the way.
Teach me all that I must do
To live with Him someday.
I am a child of God
Rich blessings are in store.
If I but learn to do his will
I'll live with him once more.
Lead me, guide me, walk beside me
Help me find the way.
Teach me all that I must do
To live with Him someday.
The last part of the song really touched me as I thought to myself, "Have I taught Oliver what he needs to know in order for him to live with Heavenly Father someday? That day possibly coming sooner than I had ever imagined?" Coming to terms with the possible outcomes of this has really brought some important questions to my mind. I've thought more fully about why I am here... why I became a parent... what I'm supposed to be doing... It really makes you take an inventory of your life and makes you look at your priorities and what things you need to change and take more seriously. I want to be an eternal family. I want to live so that I can be with my family forever and be able to raise Oliver in the next life. Life is hard and I don't understand everything. I don't understand why he's going through this, but I do know that someday I will understand. I do know that it is in Heavenly Father's hands. Today at church we sang a hymn about the Lord's will being done and I just lost it. I have to admit that many things make me emotional anyways, but I was just in tears. Our submitting our will to the Father is the ultimate gift that we can give to Him. I need to align my life and refocus so that I can truly be happy and the only way that I am happy is when I'm with my family and my loved ones.
Okay... that's enough time in my mind for tonight. It's late and I am exhausted. I need to have energy to start another week of traveling to and from the hospital...
