Today we went down to Iowa City for Oliver's MRI that was originally scheduled for the 14th of September. Since some symptoms were reappearing and getting worse we asked for it to be moved up. His left eye is the eye he always wore his patch on. Recently he hasn't been wanting to wear his eye patch because he wants to be 'normal'. Even though he still struggles with double vision, he doesn't wear the patch, and yet he NEVER complains. He just wants to be 'normal' again.
We talked with the doctor who showed us the MRI and said it looked like there was a small bit of growth. He wanted to check with other radiologists to confirm it because he wasn't sure if it was scar tissue or not. The MRI's can be tricky to read. I can't say I was surprised as we figured it had grown, however it still feels like the wind has been knocked out of you. Now what to do...? Oliver was in the room the whole time and knows all that is happening. We've been completely honest with him about our options... or lack there of. Oliver is in charge of these decisions. This is HIS fight and we will support him every step of the way. Please keep him in your prayers.
Oliver in the children's waiting area watching the moving sculpture.
Mike, Jen, Mom, Ollie, Ed
Ollie in dad's hat.
Ollie getting some goodies from Jen!
Ollie and Mike Ernster.
Jen, Ollie, Mike. They are two of our favorite people to visit down there! ALL the people that have helped us have been GREAT... seriously. There is something special about the people that work down there!
Me, Ollie and Ed
Ummmmm... playing football in the hallway of the hospital. Don't worry, it wasn't a MAIN hallway! ;o)
Kinnick Stadium -- where Oliver will be Kid Captain soon!!! It is directly across the street from the hospital.
The street was lined with posters of each of this years Kid Captains! Oliver is the third one down.
At Applebees, eating steak of course. I'm so happy he can still swallow and be able to enjoy his favorite foods.
"Don't smile.... DON'T SMILE, OLLIE!!!"
Oliver has really been into Indiana Jones lately and we saw this photo on the wall near our table!
One of the many Herky statues around town!
2 comments:
What a great picture of Oliver!. Im so glad he got picked to do that!
We lost our son to DIPG Sept 18, 2009. We had 10 months from diagnoses. I just saw your son on a page I was commenting on from a story on football. Your son is handsome and we will be praying for you all. I will continue to read your blog.
I have not written my Kendrick's page in a while. Life is hard and I don't really know what to say, but here it is if you want to read his story.
http://www.carepages.com/carepages/GodissoGoodbyKendrickLittle
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